Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research |
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Data-intensive health research is a fast moving field in which public involvement and engagement (PI&E) is essential for developing socially acceptable and ethically robust processes and ensuring a social license for research practices. Nevertheless while some consensus is emerging around the importance of PI&E, commitments and practices are varied.
This presentation will discuss a collaborative process undertaken to establish a set of principles to inform future best practice in PI&E with data-intensive health research and will present the recently published consensus statement which resulted from this. You may find the original International Journal of Population Data Science article here: https://ijpds.org/article/view/586 |